While the NHS is currently a leading healthcare provider in Europe, withdrawing our participation from ERNs will negatively affect the standard of care it is able to provide patients with a rare disease.
Participation in and utilisation of ERNs is far bigger than the rare disease community. If British participation in ERNs is withdrawn you might think that this doesn’t affect you right now but the odds of it affecting you, your loved ones or simply people you know at some point in the future are high. We owe it to ourselves, those living and those yet to be born to approach ERNs with a little more pragmatism than we’ve managed of late.
If we don’t, the front line of healthcare in all disciplines will suffer further as a result and we only stand to make an already uncertain looking future worse. Ultimately, people will die prematurely.
I shall leave you with this: In 1624, John Donne was diagnosed with typhus and was lucky enough to escape with this life. It was during his recovery that he penned one of his most famous meditations ‘No man is an island’.